DATA: How does the analyst point to the data practices in the collaboration? Or to the data produced about the collaboration? Where does that data travel?

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Angela Okune's picture
August 28, 2018
  • AO: The analysts focus on the data and findings and their circulation, stating that community members should be able to decide where they want it published and also how or which data is analyzed or how and where future studies might occur. (7)

  • AO: The analysts have an explicit paragraph where they describe their own data ethics practices noting that their original data was gathered under an exemption but they still obtained verbal consent from participants. After success of method, they applied for ethics review of secondary use of data from Canadian body. (8)

  • AO: The analysts noted that some community members wanted access to raw data whereas others just wanted summaries. They argued that all aspects and data of the project is crucial for informed consent to ensure people have enough information to fully understand the risks or benefits associated with a research project.” (14)

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